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Flashback to Pentecost school vacation 🏊♀️💦🚶♀️
Sooo proud of this girl 🤩! She defied her fear of swimming by herself in the second lane (meaning further away from somewhere to hold onto just in case) and swam and swam. It was a huge mental effort and a huge achievement for Ciara 💪.
For those who didn’t know: a body that is scared will stiffen. And a stiff body will drown. Kris and Ciara talked lots about the picture below during those two weeks.
The Trexo Robotic sessions helped Ciara’s body get back into alignment🚶♀️. The crouching was gone, as was the backward arching while standing. Growth spurts definitely suck as they totally mess up the body.
There are no limits, keep reaching for the stars 🌟
PS: The head towel is the new Lanza street style #cpa#cerebralpalsyy#cpwarrior
#inklusionr#inclusionp#inclusionmattersn#SDRc#sdrchangeslivesn#nevergiveup #sdrchangeslives #nevergiveup
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We are heartbroken to learn that Ciara‘s surgeon Dr. TS Park from St. Louis Children’s Hospital suddenly passed away - 2 months after having retired. Ciara was his patient #4448.
Dr. Park was a greatly gifted surgeon and a wonderful person. He deeply cared for his patients and their well-being. I’ve never met a doctor like him (and we’ve been to quite a few). Even years after Ciara‘s surgery he happily answered our questions. He really wanted to see „his“ kids thrive and live their lives in the absolute best way possible.
We‘ll be forever thankful to him ❤️. May he rest in peace. Our thoughts and prayers are with his fami#sdrchangeslives
#stlch:#SDRr#cpngeslives.com/
#sdrchangeslives #stlch #sdr #cp
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He always believed in their potential. We are forever grateful and still can’t believe his life and retirement was cut so short. 💚
Amazing man I Remember forever Ts Park
😢😢
❤️VON GANZEM HERZEN DANKE❤️
Nach einem Schuljahr voller Chaos und kurzfristigen Lösungen was die
Schulbegleitung betrifft, kehrt ab September wieder Ruhe ein. Ciara hat eine
neue, zweite Schulbegleitung gefunden 🥳.
Von ganzem Herzen Dankeschön, dass
ihr den Beitrag so fleißig und immer wieder geteilt habt. Denn nur dadurch hat uns Petra überhaupt gefunden 🙃.
Unendlich dankbar sind wir auch meiner Mama, die Ciara fast das komplette Schuljahr hinweg zuverlässig zwei Tage pro Woche in die Schule begleitet hat. Ohne sie hätte Ciara die Unterrichtsstunden nicht besuchen können ❤️.
Inklusion ist in Deutschland leider mit unendlich vielen Hürden verbunden. Das komplexe, bürokratische und unflexible System mit Entscheidungsträgern (in unserem Fall die Eingliederungshilfe) und einer Vielzahl an Trägern (die die Schulbegleitungen anstellen) gepaart mit Fachkräftemangel sind ein Kampf für uns als Familie. Situationen wie diese halten Familien davon ab, dass mehr Kinder inklusiv beschult werden, auch wenn das Kind inklusiv beschult werden könnte.
Die Gesellschaft braucht Vielfalt - und zwar gut ausgebildet 📖. Ich wünsche mir sehr, dass unsere Politik bald über den#cpl#cerebralpalsy #cpwarrioru#inklusionh#inclusione#inclusionmatterst#teilhabed#UNKonventionp#UNe#SDRa#sdrchangeslivesr#nevergiveup#inclusion #inclusionmatters #teilhabe #UNKonvention #UN #sdr #sdrchangeslives #nevergiveup
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Toll das es nun leichter wird, bewundernswert wie ihr immer neue Hürden meistert. Eure größte Belohnung sind sicher Ciara’s Fortschritte. Freu mich für euch 🙂
❤️ freut mich riesig dass ihr jemand gefunden habt 👍😘
Nicht mehr ganz drei Wochen und ich bin dienstags und donnerstags mit Ciara in der Schule. Ciara ist ein tolles Mädel und ich freue mich riesig auf sie und ihre wunderbare Familie! Das Abenteuer kann beginnen🙃 ich bin sooo dankbar dafür, dass ich durch die vielen Helferlein bei FB auf die Stelle als Schulbegleiterin aufmerksam gemacht wurde 🌻
Das ist schön zu lesen! Ciara ist eine der Schulpaten der zukünftigen Klasse meines Sohnes. 🤩
🎉🎉🎉toll dass Ciara jetzt wieder eine Schulbegleitung hat!!
Das ist schön, dass Ciara endlich eine Schulbegleitung hat. Alles gute euch weiterhin und viel Glück, dass ihr eure 2 großen Hürden auch gemeinsam meistert.
oh so happy. so happy. i hope this continues- you guys need a break!
Summer is … the screaming of those two when the sprinkler hits ☀️#cp❤#cpwarriorw#cerebralpalsya#twins #SDRn#summerlovemerlove ... See MoreSee Less
Abstreich 2024! Ciara was excited to find out what that ritual was about, as she has never been around to one before. She said it was super fun and that she is looking forward to her own in .... let me count ... only 6 years time 😂.
To all those living abroad: when pupils are done with their final high school exams (12th grade) in Germany they secretly organize a day where they play tricks on pupils and teachers at the school - it's usually everything from blocked entries, pyramids of tables, lots of water and water guns, toilet paper decoration, loud music and laughter...
On the picture Ciara is shown with her 1:1 of many years, Martina. Those two have experienced the highest highs and the lowest lows together in the past 6 years. So grateful for having her at Ciara's side ❤️.
#cp #cerebralpalsy #cpwarrior #inklusion #inclusion #inclusionmatters #SDR #sdrchangeslives #nevergiveup #Abi #abi24 #abistreich
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Flashback to Easter school vacation part 2 🐣
The second week of the Easter school vacation was all about singing and acting - things Ciara really LOVES. Anpfiff ins Leben Inklusiv Aktiv
arranged a musical week in cooperation with the music school Musikschule Schönal;nau.
Ciara had a fun week with 24 other (disabled and non-disabled) kids and performed brilliantly as Mary Poppins on the last day.
Thanks to the wonderful team as well as to the Dietmar-Hopp-Foundation for financing such activities to pave the way for an inclusive society. Being able to grow up together, go to school together, spend school vacations at the same activities/camps will make our society a more tolerant one - one, in which everybody is a part of and really belongs to. It is so much needed!
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Wie schön,dass du so tolle Dinge erlebst.viel Spaß bei allem was noch kommt
Flashback to Easter school vacation part 1 🐣🐰
… in our house school vacation often equals intensive therapy, as school leaves neither space nor energy for intensive workouts during the week.
We’re so happy that CiaraCharli;s theCK Intensives from CK Intensives came to Germany once again (saving us for lots of travel, organizational stuff and money).
Ciara worked hard to tackle the weakness and tightness caused by all the growth spurts she is going through. Almost to the date, Charli has been a part of Ciara’s journey for 5 years – and we’re so grateful for her and her approach. It’s a very thin line between pushing a child to reach a certain goal and demotivating by asking too much. She is a wonderful coach and therapist.
Thank you, Charli 💕 – see you in August! Until then#cp&#cerebralpalsyh#cpwarrior #SDR #sdrchangeslivesz#ckintensivese#strengthandconditionings#nevergiveupeslives #ckintensives #strengthandconditioning #nevergiveup
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Can anybody guess what Ciara’s wish for her birthday was…?
…. The right answer is: horse-back riding at her favorite stable (where she usually goes once a week). It’s her happy place ❤.
Funnily Emilia asked for the very same thing, just at the stable where she goes to. Luckily, I could talk them into going out for dinner with us and Granddad anyway (meanwhile Grandma was hitting#cpe#cerebralpalsyt#sdrchangeslivesb#SDRa#ridingforthedisabled##rda##thepowerofhorsesl#horsepowerePowerOfHorses #HorsePower
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Happy birthday to Ciara and Emilia 🥳💜 hope you are all keeping well
Happy Birthday Ciara & Emilia ❤️🎉🎂
Alles Liebe, Gute & Gesundheit an Ciara und Emilia 💕🍀 Happy Birthday 🎂🎉
Stort tillykke til pigerne 🇩🇰🇩🇰🥰🎉
Happy Birthday Mädels 🎂🍀🍀🥰
Alles liebe und gute den 2 Geburtstagskindern. Vor allem Glück und Gesundheit.
Alles Liebe den beiden Geburtstagskindern ,viel Glück bei allem was im neuen Lebensjahr auf euch wartet
Tillykke med Emilia og Ciara❤️
Alles Liebe und Gute für die zwei Geburtstagskinder 🎉🎊🎈
Stort tillykke med prinsesserne 🇩🇰❤️❤️
Rida och vandra med sin Pappa och Mamma🥂🌹🥰
Stort tillykke med pigerne❤️🎉🇩🇰
Kæmper tillykke til Ciara og Emilia🩷🩷 Dejligt med en ridetur. Kys dem 😘
Great one and really worth to share👇. I need to add, that it‘s the same for people living with CP. So let‘s work on not assuming and encouraging and trustin#AssumeThatICans#EndTheStereotypese#ndsso#nationaldownsyndromesocietydromesociety ... See MoreSee Less