Applause with water ๐ฆ๐. 2 weeks intensive with Kris at Swim Lab International went by way too fast. Ciara, you did more than amazing! You literally worked your butt off every single day. You gained so much, both with swimming, overall strength and control of your movements. Again you leave me speechless with your endless will and power. Keep reaching for the stars ๐
To those wondering what that machine in the picture to the right is: it’s called Tréxo Robotics and helps to learn and memorize the correct walking pattern. Ciara’s feedback on it was interesting to hear. She said that Tréxo helped her to feel how walking freely, meaning without aiding devices, feels like.
Did I mention that she didn‘t want to go home but wanted to stay for a th#SDRw#sdrchangeslives,#slch #cp
#cpwarriorh#swimlabe#disabilitydevelopment #trexoab #disabilitydevelopment #trexo
I’m over the moon with your progress Ciara! See you soon! ๐โ๏ธ๐โ๏ธ๐โ๏ธ
Immer wieder unglaublich โค๏ธโค๏ธโค๏ธ
Grossartig liebe Ciara , erstaunlich was du leistest!!!
Sometimes pictures really speak for themselves. Ciara is back at Swim Lab International for a two week intensive. She has been looking forward to it a lot. Let‘s get the most out of it, my little big girl โค๏ธ.
super Ciara, viel Spass und viele Erfolgserlebnisse <3
Sounds so familiar ๐. Let‘s be all more aware of another and another‘s feelings. See the world through somebody else’s eyes, picture yourself in the same situation. How would you cope?Lads, thanks so much for all your lovely comments and messages, just wanted to give you all an update as regards Anna, thankfully today she has bounced back and is in great form... also wanted to leave everyone know that Anna goes to an amazing school and they have supported so much, we couldn't ask for better, she is also lucky enough to have some great friends, these hurtful words are from one child, what upsets Anna along with those words is that "loads hear it mam but nobody says stop" ๐ฅ
No matter how hard we work, no matter how many miles we travel, no matter what doctors we see nobody can help me with this and it absolutely breaks my heart....
For the second time this week, this kid has come out of school crying and God, it takes all I have not to cry with her...
Anna is tough stuff and takes most things in her stride, but some comments hit hard...
Today she was playing catch in the yard and unfortunately she kept getting caught, but the hard part was, one of the kids said "catch Anna, sur she can't run"but afterwards this same kid, ran circles around Anna and kept saying" I bet you can't catch me " ๐ฅ๐ฅ๐ฅ
Why oh why can kids be so cruel, Anna is 11 years and has been around these kids for years, so they are well aware of her difficulties...
She walked too the car today on her own because she can't walk as fast as the others ....she got into the car and burst out crying and there is nothing I could do or say to console her and that hurt me, not being collected in the wheelchair spot was a huge thing for Anna, today she asked me can I park there in future....
Today this kid lost her spirit, her fight, by the actions of one child.....
It took all I had not to cry with her....
After a good cry from her, thankfully the promise of a trip to Penney's/ Primark has done the trick...
So while she has now stopped crying, Now I'm crying....
I'll do my best for you Anna, always but sadly I can't control how others will treat you, but for all you parents reading this today, please, please talk to your kids and ask them to be more aware of those around them, ask them to think before they speak, try and picture the world through someone else's eyes, it might just make someone's day a little bit easier....
Feeling so deflated right now๐ฅ
We've spent the extended weekend at Swim Lab International's satellite disabilityDays in Clonmel, Ireland. We usually travel to Lanzarote for the disabilityDays which gives Ciara a boost and improves her balance and core strength.
During the disabilityDays in Clonmel we realized that Swimlab is giving away a one week training in exchange of a good reason why we should win.
We should win because Ciara loves visiting Swimlab. It's fun, challenging and giving. We feel that we are part of a big family and one additional week for Ciara will make her achieve her target faster.
#trexoineurope #swimlab #letsgetciarawalking
๐ฅฐ๐
Missing Austria and the mountains and the snow and …. . Then we went on a bicycle tour instead ๐. I decided to create the one and only “Apple Strudel Tour” which ended at a café which serves apple strudel.
8,8 km (app. 5,5 miles) in 1:38 hours – Ciara has never been able to ride a bike so many kilometers before SDR. But the thought of getting #letsgetciarawalkinge#cpg#cerebralpalsyt#SDRa#sdrchangeslivese#cafeleisinger #sdrchangeslives #cafeleisinger
I fully understand ๐ Apfelstrudel is soooo good!
Imponerende๐
Super….Ziel erreicht ๐
den hast du dir da aber auch verdient!!!!
Awesome โค๏ธ
Enjoying the last day of 2021 with my favorite small people โค๏ธ. Happy New Year ๐ and thank you for joining our journey.
Alles Gute ๐ für euch zum neuen Jahr ๐ ๐ฅ ๐
So schön strahlende Gesichter ๐๐๐So soll es bleiben ๐๐๐๐ป
Here’s to 2022!! ๐ฅณ
Finally together again โค๏ธ. Merry Christmas to all of you!
Glædelig jul til jer๐๐
Großartige Familie , schön wie ihr alle zusammenhaltet.
Wahnsinn, freut mich für euch
โค๏ธ
Merry Xmas!
We have spent the past week in Denmark attending the #familiecamp at Egmont Hรธjskolejskolen, hosElsass Fonden Fonden. The purpose of the camp is to improve self-confidence and self-esteem in children with Cerebral Palsy as well as establishing new friendships. Especially for the siblings who are often “forgotten” the camp is a way to meet children in a similar situation.
Throughout the week many new things were discovered - and being a child with a special need doesn’t nescessarily limit the possibility of taking on new challenges.
Especially Ciara is totally “sold out” this weekend after an intensive week full of physical challenges and lots of walking in her walker, climbing, powerchair football, archery, swimming, wat#letsgetciarawalkingd#SDRf#sdrchangeslivesgetciarawalking #sdr #sdrchangeslives
It’s great to see Chiara participating in all these different sports and activities. Each one demanding/training/activating different areas of the body and mind. Such cross over activities will help her a lot and also be fun. She will walk again. I just know it. Step by step ๐๐๐ช๐ป
wow this looks amazing! Is it only for kids who also speak danish?
Man sieht ihr den Spaß an trotz großer körperlicher Herausforderung ๐ฅ ๐งโ๏ธ ๐น! Und toll, dass ihre Schwester mitmachen konnte und genauso viel Spaß hatte โค๏ธโค๏ธโค๏ธ
Super, dass sieht nach jeder Menge Spaß aus!!!๐
Super,das auch ihre Schwester teilnehmen kann,fördert alles ๐๐คฉ
hvor skønt anja โค๏ธ
Ciara had a fantastic intensive with Charli at Walk This Way UK ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ.
For the very first time she succeeded with balancing with crutches and started working on taking steps with them ๐๐๐ป.
And Ciara realized (and said) that she has much more stamina. I can confirm: she powered her way through 2 hours intensive training each day ๐๏ธโ๏ธ ๐โ๏ธ๐ช.
Emilia got lucky as well - one of the other kids couldn‘t come so she got her own workout ๐๏ธโ๏ธ ๐ฆ. And as Emilia loves competitions, I got lucky (or better sore) as well ๐คฃ.
Look at you, Miss Ciara!! I have goosebumps ๐ Make sure Mum and Dad give you a BIG Congratulations cuddle from me โ๏ธ๐
Amazing Ciara! Your smile tells everything! I’m super proud of you! And cannot wait to see you soon ๐โ๏ธ
Such great news! Congrats!!!
Well done Ciara ๐ช
Step by step you are moving forward ๐๐๐๐ป
Hvor er hun en super sej pige ๐
Du er så sej søde Ciara โค๏ธ๐๐ช
Man sieht das Training zeigt Erfolge …….super wenn man für sein Ziel so viel Energie freie setzt…….๐๐๐๐
Glückwunsch und weiter viel Erfolg ๐๐๐ฏ๐ฏ๐ช๐ช
Wie toll! Du machst das alles so super, liebe Ciara!
Großartige Leistung, großartiges Mädchen โค๏ธ. Und trotz Anstrengung immer ein Lächeln im Gesicht ๐ฅฐ
freu mich immer wenn wieder ein kleiner Schritt gemacht ist.Toll dass du so eifrig trainierst, da hast du deine Fortschritte verdient!!